Resources for working with sensitive data

• Protecting sensitive data course by MANTRA.

• Presentations by Zosia Beckles, Michele Voznick and Tessa Darbyshire on Responsible Data Management: Legal & Ethical Aspects as part of the Fail to Nail it sessions.

• Presentation by Rob Gommans on GDPR and the Processing of (Identifiable) Image, Audio, and Video Data for Scientific Research Purposes.

• Presentation by Stephan Heunis on Brain research data and personal data privacy: practical tips to share and protect.

• Presentation by Walter Scholger on the GDPR with resources such as informed consent templates (18:30 - 38:50).

• Presentation on handling personal data by Enrico Glerean and Päivi Lindström from Aalto University. See here for the full course.

• Presentation on the GDPR by Rosalie Salameh.

• Presentation and article on privacy by design.

• Presentation on Ethical and legal issues in data sharing by Hina Zahid.

• Slides by Hanne Elsen on Privacy and the GDPR in the Research Life Cycle.

• Slides on ‘How to share qualitative data: videos and interviews’.

• Workshop materials on data de-identification procedures for data sharing.

• Sensitive Data - from Elixir’s RDMKit.

• Presentation by Manolis Terrovitis on data anonymisation made easy.

• Anonymisation and Personal Data by the Finnish Social Science Data Archive.

• [Mey18], [TKM+16]

• ARDC guide on Publishing Sensitive Data.

• Qualitative Data Repository Guidance on Human Participants.

• Data Privacy Handbook for researchers dealing with personal data at Utrecht University (NL) and beyond (work in progress).